WHAT DO STUTTERS AFFECT?
Many
people have functional lives and successful careers despite
their disfluency (more below).
Pop Quiz! Which of the following famous people stutter(ed)?
Was it...
A. Marilyn Monroe - Actress, overall beauty
B. James Earl Jones - Actor, voice of Darth Vader
C. Julia Roberts - Actress
D. Bruce Willis - Actor
E. Tiger Woods - Pro golfer
F. Winston Churchill - Statesman, Orator
Or...
G. Kenyon Martin - NBA player
O.k. I know
the suspense is killing you.
Answer: All of them! See how much smarter we're making you?
(
see
more at the Stuttering Foundation)
If that's not enough proof that you can stutter and still
be successful...
...I don't
know
what is.
That being said, this disorder can have a
huge impact on a
person’s self esteem and confidence.
If
left untreated,
it can be very detrimental, affect a person’s life choices and stop
them from reaching their full potential.
People with this disorder often have:
- Negative attitudes toward speaking
- Anxiety, are nervous about talking
- Guilt, shame, fear, embarrassment, and
frustration
These
feelings can range from being
very
mild and hardly impacting a person’s
life
to very severe
and preventing the person with the disorder from
functioning socially at all.
The negative feelings and attitudes
can
prevent
a person with this disorder from doing everyday things such as
ordering food at a restaurant, speaking on the phone, or even
speaking at all.
Negative feelings and attitudes come from:
- Feeling out of control
- Concern and anxiety of parents
- Teasing and rejection by other children
And these can:
- Make stuttering worse and more often
- Cause secondary/escape behaviors
- Cause avoidance behaviors
- Make a person not willing to risk change
- Make it harder for therapy success or
improvements to “stick”
Treating negative feelings and attitudes that accompany this disorder
is a
very
important focus in therapy.
These negative feelings can either make
stuttering therapy harder because
it requires the person to face and overcome them, or they can make it more
successful because they empower and motivate the person to overcome
the disorder.
Bottom line: They
need to be treated and handled carefully.
Teasing
is a huge problem for children with this disorder and must be dealt with by
parents, teachers, Speech Pathologists, and the child. An SLP is
trained to help deal with teasing and we have some information here as
well.
Other’s
reactions to this disorder are a big problem as well.
Often people don’t know how to react. They are awkwardly caught off
guard, or they can’t wait for the person to finish what
they are saying
During Graduate School, one of my favorite
professors, Anne Elsweiler, CCC-SLP who taught my Fluency class, gave
us an assignment to get stuck on purpose.
We were to do this while talking to 10 different
strangers in different locations. Then we wrote our experiences about
how others reacted.
My experience...
Some people didn’t react at
all, but others wouldn’t make eye contact with me, one girl even let
out a little laugh, and a server at a restaurant even asked me if I was
okay after I stuttered.
I hated their
reactions.
I became really
self-conscious
and
nervous
about talking to the next person. If
you ever want to feel what it is like to have this disorder, try doing it on
purpose.
It helped me see, to a small degree, what a person with this disorder has to deal with...
...every day.
Time Pressure
is also one of the worst things for people with this disorder and it is getting worse.
Today’s
world is very fast-paced and people are always trying to do things as
quick as possible. This time pressure is very common in our
communication.
When we talk to others and they don’t answer fast enough, we get
impatient and start talking
again or we assume the other person didn’t hear or understand us.
People with this disorder feel this pressure to respond, plus they are stressed
because they know that if they pause, they might have trouble getting
started again.
To understand what this feels like, try this
little experiment of resisting time pressure.
The next time you start a conversation with someone...
...count silently to 2
before responding to them.
Make
sure you keep eye contact with the other person while waiting the 2
seconds and see what happens. Professor Elsweiler from Grad School also
had us try this.
And if you think that is difficult...
...try it on
the phone.
None of us will ever fully understand what it is
like to have this disorder (unless you have it), but it is important to remember
that it affects people in many complex ways.
That’s why being
understanding, patient, and getting treatment are all very important.
WHAT DOES AN
SLP DO TO HELP?
Speech-Language
Pathologists (SLPs), first of all, test to see if it is really
the actual disorder or normal disfluency like we all have. The criteria they
consider is listed here.
They use a variety of
standardized and non-standardized tests, parent
and teacher interviews, and observe conversations in
different environments to make their assessment.
SLPs evaluate
the child on
multiple
levels.
From
language to articulation skills, to hearing ability, as well
as negative feelings and attitudes about their speech.
If the disorder is found, the SLP determines what
level it is
(borderline, beginning, intermediate, advanced) and
how severe it is
(mild, moderate, severe).
The SLP will most likely try some quick therapy techniques to see if a
certain method makes a difference and which one will most likely help
the most.
After gathering all the information, they will make recommendations for
therapy if needed and what kinds of things should be changed in the
environment at home and school, etc.
SLPs make goals and provide
fluency
therapy for people with this disorder using 2 different approaches.
They should also be able to determine the prognosis (likelihood of
recovery or improvement) based on what they find during testing. There
are certain indicators that SLPs use for
good
recovery or a "positive prognosis".
WHAT CAN I DO
ABOUT IT?
Do you
want to know what you can do RIGHT NOW to help your child stutter less?
- Read “Tips for talking with your child
and what you can do at home” (coming soon)…
- Read about how
to react when someone gets stuck
- Check out our e-book on “Home
Strategies for Stuttering”
You can also read what the danger signs are and see how
concerned you should be (coming soon).
If you know your child has this disorder, you can check into
the very successful
Lidcombe Program if you want to do
a structured home therapy program led by an SLP but carried out by a
parent.
I recommend learning all you can about this disorder because it is very
complex and emotionally challenging.
The more you learn about it the
more you can do about it.
…but overall, please contact an
SLP as
soon as possible.
SLPs are the experts in this area and they want to
help in every way they can.
They will even train you on what you can do at home if therapy is not
quite needed or if you can’t afford it.
This is because, like all other areas in communication, but especially with
this disorder, the sooner you get help, the better! Children are much more
likely to recover from this disorder the sooner they get therapy.
RESOURCES WE
LIKE
The
Stuttering Foundation of America
- Largest non-profit organization for this disorder, affordable books and
videos for therapists, parents, and people with this disorder. (
visit
site)
MNSU
Stuttering Homepage - lots of
information on stuttering, including "Especially for Teadhers",
"Especially for Parents", "Kids who Stutter", "Dealing with Teasing",
"How to give a classroom presentation" and more. (
visit site)
National
Stuttering Association -
find support groups across the U.S. and newsletters for adults and
children. Their focus is on self-help for people with this disorder. (
visit
site)
The
Association of Young People who Stutter
- If you have this disorder...you have Friends. Find a network of support for
kids, families, and professionals here. (
visit
site)
American
Speech Language Hearing Association
- professional association for Speech-Language Pathologists, that gives
general information for the public about this disorder.
(
visit site)
Specialty
Board on Fluency Disorders
- for SLPs who want to specialize in fluency disorders. (
visit
site)
British
Stammering Association (visit
site)
International
Stuttering Association (visit
site)
Stuttering
Recovery.com (visit site)